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{
  "resourceType": "CodeSystem",
  "id": "DCH-BloodSpotOutcomeSCD-1",
  "url": "https://fhir.nhs.uk/STU3/CodeSystem/DCH-BloodSpotOutcomeSCD-1",
  "version": "1.0.0",
  "name": "DCH Blood Spot Outcome SCD",
  "status": "draft",
  "date": "2017-12-04T00:00:00+00:00",
  "publisher": "NHS Digital",
  "contact": [
    {
      "name": "Interoperability Team",
      "telecom": [
        {
          "system": "email",
          "value": "interoperabilityteam@nhs.net",
          "use": "work"
        }
      ]
    }
  ],
  "description": "A CodeSystem to identify the outcome of the blood spot screening for sickle cell disease.",
  "copyright": "Copyright © 2017 NHS Digital",
  "caseSensitive": true,
  "content": "complete",
  "concept": [
    {
      "code": "01",
      "display": "Specimen received in laboratory"
    },
    {
      "code": "02",
      "display": "Screening declined"
    },
    {
      "code": "0201",
      "display": "Declined, no history of being screened"
    },
    {
      "code": "0202",
      "display": "Declined, screened in UK (as reported by parents) with no evidence of result"
    },
    {
      "code": "0203",
      "display": "Declined, screened outside UK with evidence of result"
    },
    {
      "code": "0204",
      "display": "Declined, screened outside UK with no evidence of result"
    },
    {
      "code": "03",
      "display": "Repeat / Further sample required"
    },
    {
      "code": "0301",
      "display": "Too young for reliable screening"
    },
    {
      "code": "0302",
      "display": "Too soon after transfusion (<72 hours)"
    },
    {
      "code": "0303",
      "display": "Insufficient sample"
    },
    {
      "code": "0304",
      "display": "Unsuitable sample (blood quality): incorrect blood application"
    },
    {
      "code": "0305",
      "display": "Unsuitable sample (blood quality): compressed/damaged"
    },
    {
      "code": "0306",
      "display": "Unsuitable sample: day 0 and day 5 on same card"
    },
    {
      "code": "0308",
      "display": "Unsuitable sample: NHS number missing/not accurately recorded"
    },
    {
      "code": "0309",
      "display": "Unsuitable sample: Date of sample missing/not accurately recorded"
    },
    {
      "code": "0310",
      "display": "Unsuitable sample: Date of birth not accurately matched"
    },
    {
      "code": "0311",
      "display": "Unsuitable sample: Expired card used"
    },
    {
      "code": "0312",
      "display": "Unsuitable sample: > 14 days in transit, too old for analysis"
    },
    {
      "code": "0313",
      "display": "Unsuitable sample: Damaged in transit"
    },
    {
      "code": "0314",
      "display": "Sickle - Too premature for testing"
    },
    {
      "code": "04",
      "display": "Condition not suspected"
    },
    {
      "code": "05",
      "display": "Carrier"
    },
    {
      "code": "06",
      "display": "Sickle Cell Disease not suspected, carrier of other haemoglobin"
    },
    {
      "code": "0601",
      "display": "Result consistent with haemoglobin C carrier"
    },
    {
      "code": "0602",
      "display": "Result consistent with haemoglobin D carrier"
    },
    {
      "code": "0603",
      "display": "Result consistent with haemoglobin E carrier"
    },
    {
      "code": "0604",
      "display": "Result consistent with haemoglobin O-Arab carrier"
    },
    {
      "code": "07",
      "display": "Condition not suspected, other disorders follow up"
    },
    {
      "code": "08",
      "display": "Condition suspected"
    },
    {
      "code": "09",
      "display": "Not screened/screening incomplete"
    },
    {
      "code": "0902",
      "display": "All screens: >1 year, too old for screening"
    },
    {
      "code": "0903",
      "display": "Moved out of area"
    },
    {
      "code": "0904",
      "display": "Not contactable, reasonable efforts made"
    },
    {
      "code": "0905",
      "display": "Baby died"
    },
    {
      "code": "0906",
      "display": "Not required, previous valid result"
    },
    {
      "code": "10",
      "display": "Haemoglobin S not suspected (by DNA) No other haemoglobin/thalassemia excluded"
    }
  ]
}